I have severe hemophilia A with extensive joint damage in both of my ankles which required extensive plasma derived factor products, synovectomies when I was 6 and 8, and contracted secondary infections of HIV and Hepatitis C. Because I have 0-1% factor level, I have received better care than others with low, but higher levels of factor, however, even though my care is better, I am still questioned by every medical professional with whom I share my diagnosis. I have been directly told that I am wrong and that I cannot possibly have a bleeding disorder, even now after living with and being treated for it for over 50 years. I am also told that I don’t have classical hemophilia and that I must have VWD instead. Physicians and geneticists insist on showing me the typical pedigree to “demonstrate” how wrong I am about my diagnosis or they say that the only way I could possibly have hemophilia is to have a father with hemophilia and a mother who is a carrier. While that is true, it is not true in my circumstance. I do have a father with hemophilia but my mother is not a carrier. I have had to turn the tables and discuss the concept of skewed x-inactivation with them as it applies to the geneticts of hemophilia and even then they are doubtful. While I am so grateful to actually have treatment, it is still very frustrating and sometimes, infuriating to have my entire life experience is so easily denied by medical professionals. They should be trained to listen to their patients and save their judgements until all data is gathered. Given that it is difficult to deny a 0-1% factor levels, I cannot imagine how much more difficult this would be for women with higher, but still insufficient levels of factor when seeking medical care.